Monday, June 7, 2010

Samantha's Sensory Processing Condition














What exactly is sensory processing dysfunction? The easiest way to understand it is by seeing it as a condition that’s been ranked by specialists at the bottom of the autism scale. We all know what autism is – the inability of individuals to interact with their outside worlds. In some cases, an autistic person is totally mute but can communicate in other forms. Autism also prevents individuals from appropriately processing all the things that bombard them on a daily basis.

If you think about it, there are a multitude of things that create noise in our modern lives. We take them for granted because we’ve learned to adapt to them over time. Right now as I type this I’m only consciously aware of the noise of the keyboard because I’m thinking about it. Up to this point I didn’t hear it. At the same time, there’s a hum from an appliance, birds chirping outside, and pages flipping as Samantha looks at her book. In actuality what I can do as I write is block out all those noises and focus just on the words I’m recording here.

This is a fairly quiet morning. Add to that the noise of the day as it gets going and you get the picture. Not only audible noise is an issue. What we see with our eyes is another thing that comes into play. Right now I’m focusing on the things within my peripheral vision in this room. A moment ago I didn’t “see” them at all. The other sensory things that we all easily identify are what we smell, what we feel or touch, and what we taste. There’s also a “sixth sense” that affects people that I’ve learned about as I’ve researched this topic. That is our sense of balance and position in space.

A person with sensory processing dysfunction can exhibit problems with any or all of these inputs from their environment but still function at a fairly normal level in everyday life. In our case with Samantha, she has issues with all, and functions well as long as she’s not overly stimulated. When she gets overly stimulated, she reacts in the extreme, by crying or becoming hyperactive. She has great difficulty in controlling her emotions and is unable to express what’s bothering her. Lots of times I just “know” because I’ve observed her for so long. When she was a baby, she hated sitting on the floor because of vibrations from appliances (it took me a long time to figure that out). She also reacted very strongly in cold and windy weather. Now I know that on a windy day she’ll get agitated and I’ll try to help her deal with it without needing her to tell me. But in other cases, I’ll know something’s wrong but can’t get her to talk; because she’s already agitated she’s unable to verbalize the problem. She resorts to baby babbling and fussing, sometimes even panicking. She has some gaps in language anyway which might not be related to sensory processing, but that’s a whole different story.

All of the specific ways sensory processing dysfunction affects Samantha are too many to list here. Suffice it to say that all of life is a challenge for her. Nothing comes easily or automatically. Most children learn to process inputs and then “pick up” on things without much extra effort, like speaking and running around in their back yard free of fear. Believe it or not, Samantha gets freaked out by moving clouds in the sky. She wants to hold my hand when we cross a bridge, fearing that it will not hold her up. I could go on and on, with feeding issues, clothing, and schooling. Even playing is a challenge – in fact there’s a book on sensory processing dysfunction titled “The Out-of-Sync Child Has Fun” listing specific ways to “teach” your child to play.

I have struggled a lot with raising Samantha but now am used to it and feel fairly confident in my ability to deal with situations as they arise. That doesn’t make it easy, but it’s less stressful for two reasons: I understand what’s going on and can deal with it appropriately, and I don’t worry as much about how she’ll be able to function in life in the future. If she needs medicine to keep her anxiety under control, then we’ll go that route. For now, we’re working on desensitizing her and seeing how much she can outgrow on her own.

Saturday, May 8, 2010

Top Ten

I'm doing a 30 day devotional from the book Choosing Gratitude by Nancy Leigh DeMoss. Today I'm writing a list of my top ten spiritual blessings. Nancy says, "Since a whole lifetime isn't enough to say thanks for these blessings, the next time your mind is troubled by sad or worrisome thoughts, pull out your top ten and consciously transfer your focus from whatever is weighing you down, and start giving thanks for the things on your list." Excellent suggestion.

My top ten I wrote in my journal:

1. Salvation
2. Beautiful world to enjoy (take a minute to watch my slideshow!*)
3. God's promises
4. God's protection
5. Family - immediate and extended
6. God's personal leading in my life, Psalm 139:16 "All the days ordained for me were written in your book before one of them came to be."

Normal, Illinois: Christ Church, campus ministry opportunities, Peoria clinic, wind energy, home-school community and great Christian schools

7. Health and medicine
8. Missions/ missionaries
9. Books - number #1 being the Bible and then all the rest
10. Friendships and Community

* slideshow on This is the Day if you're reading the automatic feed into Facebook Notes

Monday, April 26, 2010

Home-schooling

Now why would I address this topic? I home-schooled for ten years and then stopped. I have one child who has never been officially home-schooled and probably won't be, unless God makes it clear that she should be.

Here's why it's on my mind. For one, I just spent a longer night than usual doing homework with Samantha, so it felt like home-schooling. Second, I took Samantha this afternoon to a rehearsal for a ballet performance she's going to do later this week for our church home-school group's end of the year show. Her teacher happens to be a teenage home-schooler and is having the class perform as her contribution to the show. Also, this morning when I volunteered at my other daughter Katrina's school, I was inspired by the lesson the librarian taught to the 5th graders, reminding me of how fun it is to teach, especially about the Lord and things we're passionate about. (She shared some stories from the Jesus Film Project.)

I still have most of my home-school materials and plan to reference them over the years as I give extra help to Samantha at home. I guess the main thing I want to convey is the conviction I've held all along, that parents are primarily responsible for their children's education, whether they do it themselves or oversee others doing it. There's a new policy at Katrina's school that I really like. They require students to bring home all their tests to get signed. In Samantha's case,instead of grades, she gets up to three stars on her work. When she only gets two stars, her work gets sent home for me to correct with her. I feel that not only are both of the schools doing a great job spiritually and academically, but they are involving the parents and value their input.

Last week, we were able to attend Katrina's science fair and see all the great projects done by the 8th graders. Tomorrow night, we have another fair at Samantha's school to see the posters they did for earth day along w/ other projects by older students. There's no way all these projects could get done w/o help from the parents, although the kids do the bulk of the work.

All this to say that even though I'm not officially home-schooling anymore, I'm still schooling. You may be wondering why I haven't mentioned anything about Bryan since he's still in school as well, and a public one at that. Well, it's true that we don't have as much involvement there; I think we would be more actively involved if other circumstances in our lives were different. But we still give him input as needed and are basically pleased with how things have worked out for him. The fortunate thing is that he makes it a priority to get spiritual input from many other sources - friends, two churches, youth group, and several Bible studies a week. He also packs up his stuff often and heads out to have his quiet time at coffee shops.

Home-schooling is wonderful and has many many advantages. I totally support anyone who continues to do it. At the same time I want to advocate that it's not the only way to effectively educate your children and teach them to follow Christ. Of course the choices we've made require additional finances, and God has made that possible for us, for which I'm thankful. Poor Samantha would be up a creek if she didn't have a classroom setting to motivate her to learn. Katrina would feel marginalized because of my own illness and having to be on call with Ethan. Not to mention that I'm a total failure when it comes to science; the experiments I had my kids do almost always flopped.

Tuesday, April 13, 2010

Ouch!

The last four days I've come to realize how much progress I've made physically because I'm back to square one on pain. My leg has been incredibly stiff w/ a lot of stinging. I've also had the weird buzzing thing in my knee. My lower back is aching a lot, mostly on the left side.

So why is this happening now? Probably a combination of all of the following:

- my trip to Chicago last Monday
- cutting back on one medicine
- exerting myself because I thought I was well enough to do so (did some extra arranging in our house because of getting new furniture, entertained, did extra cooking for church events)
- less frequent chiropractor visits

I really forgot how bad it was in the beginning. I haven't gotten quite that bad; at least I don't have electrical impulses going up and down both legs, like tiny mice running up and down, to quote a friend. That's what landed me in the ER in September '08. I was trying to eat dinner and my "good" leg went all haywire - it wasn't physically jerking but felt like it was.

I called the chiropractor yesterday to see if I could get in early but he was booked. So I'm just going to take it easy till I can see him tomorrow. I'm also going to go back on the full dose of medicine I wanted to eventually totally cut out (it interacts w/ another med I wanted to go on for another problem).

I'm also trying to decide what to do about my garage sale, which was going to be my focus this week and next.

Wednesday, March 31, 2010

Update on Chiropractor Appointment

I have decided to continue w/ chiro treatment under Dr. Bly for another 12 weeks, once a week. He reviewed several things with me today - my exrays from last week and all my neuro testing. From the exrays I saw that my neck is almost 100% better and my mid and lower back have both improved but still need a little ongoing correction. One of the things he offered to do was manual adjustment to my hips along w/ the pro adjuster machine. This seemed to be the "answer" I needed when I was considering trying a different chiropractor. I didn't mention anything to him about manual vs. machine; he just offered based on the progress I was making. He actually went ahead w/ an adjustment including the manual today, and I was pleased w/ the method he used, similar to my physical therapy. Time will tell if I experience extra relief, I'm hoping so!

The neuro testing showed that I had moved from 9 positive tests for disc and nerve pressure to only 2, and moved from 10 areas of hypo-mobility to 3.

I have also been experimenting w/ inserts in my shoes for arch support and am finding some things that are working. I had seen a podiatrist and am using one that he recommended, along w/ a couple different kinds that work better in other shoes. I now know that if I relieve pressure off the heel of my foot it puts me in the proper stance to move freely w/ minimal pain.

Thursday, March 25, 2010

My Christmas books

I'm currently working on the following four books, all of which I received for Christmas. I keep one in my car and read while waiting for Samantha's school to let out or take it with me to appointments. I use one as a devotional, one as my fiction novel, and the other for extra moments.

Choosing Gratitude by Nancy Leigh DeMoss This book is amazing!!!! It will definitely be one that I long remember and keep on my top list of life-changing books. No matter what happens to us in life, we can always find proportionately more to be thankful for as believers. Life itself, spiritual blessings and a promised future in heaven, and on and on. Even bad health is something to give thanks for because it helps us see our weakness and dependency on Christ. I highly recommend this book!!!

Falling in Love with Jesus by Dee Brestin and Kathy Tracolli
This book grew on me the longer I read it. The highlight of the book is taking a look at Mary and Martha of Bethany. They were definitely 100 percent in love with their Lord; Jesus showed His love for them in such unique ways. I would highly recommend this book for singles. It's also a good read for married women, to remember who our first love should be.

All the Tea in China by Jane Orcutt I have just started this one, and so far, so good. I'm looking forward to seeing how this young British Victorian woman gets used by God in her dream to serve God in China. Her gender limits her from being a foreign missionary unless she's married, but she finds a way.

Stories Behind Women of Extraordinary Faith by Ace Collins
This is a compilation of great women including Harriet Tubman, Mother Teresa, Lottie Moon, and Fanny Crosby. I had asked Dave for missionary biographies for Christmas and this was what he found. I'm learning a lot about these women but reading it through a critical lens because the author emphasizes more of human accomplishment than God's work. It's wonderful to learn the details about the subject's lives, however, and Ace is a wonderful writer. I think he falls into the trap of overtelling their accomplishments because he's so gifted. He also exalts the role of women, coming from more of a "liberated" viewpoint. I recommend this book for a light read.

Monday, March 22, 2010

This is the day

I'm changing the title of my blog and adding a few extra features. I hope to write about my life in general, what I'm learning through different experiences. "This is the day the Lord has made" has always been a favorite Bible verse, and the more I journey through life, the more I see its simplicity and truth.